The Poop Update & the IEP

Well, I was hoping for a better update than what I have to offer right now - we've still got deliberate pooping in the pants going on - with occasional successes in the toilet. I picked up a bottle of "Tri Salts" on the advice of nurse Kim Hamada from Dr. Freedenfeld's office. They are supposed to help rid the body of any lingering gluten. I'm not sure if it will work or not, because I've been forgetting to add it to his juice. When I added it to his juice last week, he refused to drink it. Maybe it was too much in one cup, I don't know. I'll have to add it in smaller amounts and see what happens. So that's that...

Mike and I went to Sean's IEP last week and it went as expected. I want them to pay for private speech, and they don't want to put out an extra nickel unless forced to do so. What a crappy organization the Bucks County Intermediate Unit is! I'm not talking about the teachers and the therapists, but the organization itself. Their only objective is to give your child the basics, and nothing more! How do we get these kids functioning at a higher level with this kind of mediocre system in place? I know they are swamped with all the kids flooding into the system, but that's still not a good enough excuse for screwing all our kids. For instance, Sean has been receiving "small group" speech therapy for 2 going on 3 years now. Guess how much progress he's made in that kind of a setting? That's right - none. Since treating Sean with iv glutathione and chelation, he has finally begun making more sounds and has shown the ability to begin linking these sounds together in order to make words, thanks to Jennifer over at Yarley Speech & Language. I'm talking simple words like, "bat", and "daddy", and nice approximations for things like "my turn", "turtle", "that one", colors, numbers, and can even carry a tune, though you can't understand what the heck he's singing. I need Jennifer to see Sean for a few more weeks so she can write a really in depth, meaningful report about him so that I can call another IEP meeting and present to them her findings and diagnosis. Hopefully it will be enough, but I don't know. Families like ours are stressed out enough and then we have to deal with this kind of bullshit on top of it. Kinda makes you wonder if anybody BUT you really cares about your kid. Information about meaningful services is never freely given, but always a struggle to obtain.

Tomorrow we have our weekly chelation appointment. I always look forward to seeing all the great people that work in that office and treat Sean. It's a good thing to know that you're helping to remove filth from your child's body. I hope that in time, we will really start to see some promising results. It seems like we're always waiting on things - test results, changes in behaviors, meetings, dr. appts., etc.
I prayed for the virtue of patience and God gave me Sean - go figure. But for the record, I'm still working on it. I'm a LONG way from having "mastered" that skill!