Monday, November 24, 2008

"Like Sands through the hourglass, so are the Days of our Lives"...


What a dramatic month November has been, in more ways that one! Remember the Palm Chat I was complaining about not having in a timely manner for Sean in my last blog entry? Got it. We still need to have a meeting about how to implement its use, but I know they're working on that. Over at our beloved Intermediate Unit, there are apparently "web trollers" who google news about the establishment and then pass that information on to the appropriate party. How 'bout that? Luckily for me, my blog came up in a search, its existence was told to Sean's teacher, who in turn, asked me if she could have the web address because she "heard" I had a blog. So I happily obliged her, not knowing that I apparently had written some things a certain therapist of my son's would find offensive. I debated for a while on whether or not to even write about this, but ultimately decided that IT'S MY BLOG!!! If you don't like what I write, THEN DON'T READ IT!!! I don't blame anybody specifically for Sean's Chat not getting to us in a timely manner. So I'm still baffled by this woman's over reaction to it. I wish she had gotten as angry with the IU's awful and ineffective SETT process as she was with me for writing in my blog that I was still waiting for a Chat! When I saw her while picking up Sean from school (to take him to his private speech), she couldn't wait to get in my face and be confrontational. Very professional, indeed! Needless to say, she's done working with my kid. I called the Supervisor for Childhood Services and let him know how badly I felt I was treated and after a lot of back and forth, we finally have an IEP meeting set up for December 11th. He was very nice and I told him that, depending on how this all works out, I would blog very nice things about him, if he comes through for me.

You know, if people want to waste MY time (like the Kirby salesman that comes to my door to sell me a vacuum I already own - ugh, they are BRUTAL), that's one thing. But when people are wasting my kid's precious time, and then get pissed at ME because I've found a person who's better equipped to help him, that tells me everything I need to know about that person and I don't want your "therapy"! I won't deal with somebody like that, and I think most moms with special needs kids are gonna back me up on that fact. It's just amazing how some people can't help but think of themselves first. They get their feelings hurt and that's all that matters then - not your kid or your kid's needs. Truly amazing.

I know what I want for Sean at this upcoming meeting, because I now know what works for him, and what is "appropriate", in terms of him learning language, and I'm going to ask for it. I'm not going to take their "recommendations". I know what works for my kid, so don't try telling me that you do. We've tried their recommendations and gotten a little beyond nowhere on expressive language/communication for going on 3 years now. Done with that. Let's now try my recommendations, okay?

I would like to end this on a positive note. While, for my own mental health, I needed to get that rant off my chest, I truly enjoy the people that work with Sean everyday in school, except now for that one sour grape, who is no longer working with him. My little guy continues to make gains within his current classroom setting, and I am so happy we moved him there last year. These people are exceptional, and I admire them so much. I know their pay must suck, so for them to be there teaching and caring for these kids the way that they do on a daily basis, well, they're obviously there for the kids, not the paycheck. It's pathetic that we pay athletes (many of whom use performance enhancers and are HORRIBLE role models - Michael Vick anyone?) millions of dollars. Yet we pay Sean's team of great people crap. That is the greatest injustice I can think of, next to abortion.

Sean, by the way, is still making great progress. I met with Kim at Dr. Stu's office last week and we came up with a plan of action. I began daily MB12 shots last week. Then I'm going to begin using Ribose and NADH (substances made naturally by the body with a variety of functions, but mainly help to improve energy - how this helps Sean's autism is way over my head, but who cares? It won't hurt him, and in fact, may help him - a lot) one at a time, a week at a time. If I don't get results with those things, I will move on to Valtrex. It's an oblong shaped, blue pill. I would have to wipe the blue coating off (doctor's orders - it's got lead in it I think he said), and then crush it up and put it in Sean's juice. That just sounds like a huge pain in my ass, so I'm obviously going to save that for last. We'll see what happens with the other approaches first. The shots seem to keep Sean more grounded. He doesn't seem as spacey to me. He responds better to our interactions with him. All in all, it's been a good thing, in my opinion. Though Sean would probably NOT agree with me since he's the one getting the shot in his ass on a daily basis! He's tough though and doesn't complain. He's a brave little boy and puts up with a lot of shit.

So I guess that's it for now. I'll post about the NADH and Ribose after we've tried them. I am looking forward to the break this week brings from making 4 school lunches in the mornings and running around trying to be on time for appointments and preschool lunch pick ups. I have 4 really terrific kids, and I'm going to take the time this week to enjoy each and every one of them, and to be thankful for all the joy they give to me every day of my life (I'll have to remember that the next time I'm yelling at one of them for something!)

Thursday, November 6, 2008

Speaking in Sentences


It's been a couple of weeks since I've written and I'm actually glad because it gives me time to look at my last post and see how much more progress we've made! Sean is still saying "Mom", though sometimes, like now, because he's congested, he's calling me "Bomb". Or maybe that's just Sean's way of trying to call me a bad word when he's frustrated with me! Though Mike's serene nature seems to dominate Sean's persona, there is a little bit of a temper that flares up when he gets angry, which surely comes from my side of the gene pool.

Sean is now making requests in complete sentences. For example, "Mom, I want a(n) applebar." or "Mom, I want the tom pu ta (computer)". These are extraordinary steps that our little guy has taken in such a short period of time. It's almost overwhelming at times to hear him speak. This morning after waking up and coming into our room, Sean pointed to the bathroom and said, "bathroom". Now please understand and keep in mind that Sean's speech is brand new and sounds it in some regards. Many of his words have become EXCELLENT approximations that other people are now beginning to understand. This is simply amazing, and we have real hope, for the first time, that our little guy will learn to speak. He's doing it already!

Sean is supposed to have a programmed hand held augmentative communication device sent home from school, but we are still waiting. I'm not sure for what. Our IEP was over a month ago and there's been no word on its whereabouts. I think I would probably be way more upset about the wait if it wasn't for the explosion in speech that we're currently seeing. But since I have my own way of helping Sean because I am present at his sessions with Jen so I can emulate what she's doing at home, I'm not worked up about it - yet. The flow of therapy from office to home has been so important to his progress.

We still are going to try Valtrex with Sean. I think we may see some good results from that. But we won't know anything until we give it a try. Hopefully insurance will cover it. Wait, did I just say that? Insurance? Cover something pertaining to Sean's autism? I'm laughing so hard I'm almost crying right now. No wait, they do pay for CVS brand Pull Ups. I can't complain about that.

Also, I wanted to mention Halloween. Sean was a cowboy! I didn't buy him a cowboy hat, only the horse that gets strapped onto the poor victim who's got to wear it. He was excellent! He even kept the hat on that the girls gave to him in the classroom. Since I came up to Tawanka for all the spooky festivities, I got to see the kids in action for this event. They all did a terrific job with trick or treating to the other classrooms and in participating in the day's events. I loved playing with them, most were very responsive to my attempts at engaging them in the organized activities that were set up. It takes a lot of energy to deal with even one autistic child, let alone a classroom full. These teachers, aides, and therapists deserve so much more money in their paycheck! Whatever they make, it's not nearly enough for the work they are required to do throughout their day in caring for our kids with extra needs. So thank you! I know that Sean is very happy at school, and that means so much to us.

The following day, Saturday, all the kids were out playing on our court. Sean actually went outside to be with everybody. It was really neat to see him show interest in being with the other kids. They were so sweet in interacting with him, and he seemed like he was taking it all in and learning from them. Of course we still have a long way to go in getting Sean to do all things "typical", but we're crossing things off the list like crazy right now at lightning speed with no signs of slowing up. It's a very exciting time for us and for Sean. He can now use language to express himself instead of having to point or pull us or use a picture. Can any of us imagine how that must feel for him? His self esteem must be going through the roof!

Will give more updates as I have them. By the way, Sean is still using the toilet everytime he needs to go. We've had zero accidents. I am one of the happiest moms in the world!! Go Sean!!!

Monday, October 20, 2008

Sean learned how to say "Mom" today!


Any mom of a non-verbal autistic child knows what music to the ears this solitary word is. It was the real thing, not an approximation, but just beautifully stated while handing me a colored chip for the bingo game we were playing during our session. His speech therapist has been great for him. She has really helped Sean learn how to use his mouth for functional speech. I keep asking him to say it over and over - and he is gladly obliging me. What a kid! I have 5 years worth of hearing my name from him to make up for. Oh, the things mothers of typical kids take for granted - the things I take for granted from my own 3 other healthy kiddos.

We had a really great day today. Despite the fact that Sean started our day out at 5 am, he has had one of his best days yet. He told me this morning, "poopy", and so off to the bathroom we went where he was true to his word! He needed to go again about a half hour later, telling me "poopy" again and taking my hand. We are really taking giant steps forward to say the least. What a HUGE difference!

At this point, we are just soaking it all in and enjoying seeing all these changes FINALLY occuring at such a rapid pace.

Friday, October 17, 2008

We're Back on Track!!

Wow, what a difference a few days can make! Sean is now independently pooping on the potty. When I say independently, I really mean it. Take this morning for example, I was upstairs putting make up on, and by the time I can back downstairs, there he was, standing in the bathroom, pants pulled back up, toilet paper roll emptied, toilet flushed...

But not only that, today, for the first time ever, Sean could blow his nose in a tissue! How great is that?!?! We're still not sure what caused the progression in skills. The Monolaurin or the lack of multiple cookies?? I think it's the Monolaurin.

Either way, we are seeing great strides in Sean's behavior. He's also saying more words, and sounds. He pointed to some Halloween decorations in our house and labeled them appropriately with the word, "bat". It is so cool to hear him say that! And he looks right at me while saying it, so it's not just a random word.


I will give more updates as they happen.

Monday, October 13, 2008

We're Definitely on to Something Here!

Today we had fabulous success! Sean independently went to the bathroom and pooped!! I was upstairs putting clothes away or something and I heard the bathroom light go on. Annie was asleep so I knew it was Sean in there. I gave him a minute to himself before heading downstairs to see what he was doing in there. When I opened the door, there he was, standing up with toilet paper in hand, ready for me to wipe him. I looked into the toilet, and there it was, a healthy looking load at the bottom of the bowl. His Pull Up was on the floor and completely clean. Whoo hooooo!

This was not our first success story with getting Sean back into pooping mode though. He told me "poopy" yesterday while grabbing at his butt, so off we went to the bathroom where he pooped for me. I was so encouraged by his consistent pooping efforts that I grabbed him a fresh pair of undies and put them on, figuring he'd be glad to have comfortable, breathable boxers for a change. Yeah, well, less than 5 minutes later he dropped a sludge bomb in them and so he was back in Pull Ups.

So what we've been doing since last Thursday is cutting out the cookies from his diet - they're completely off limits for now, just to give his system a break. Sean had HORRIBLE smelling gas. It was embarrassing to take him out in public places. Mike and I both felt that the cookies had a lot to do with it. Also, we took the supplement L-Carnitine out of his daily regimen. It made him smell like fish - it seeped out of every pore of his body, he breathed it out, he peed it out. It just became too much. It was becoming harder and harder to be around our own son. He stunk! The gas and the fish smell are no longer an issue. The last thing we did was reintroduce a supplement called Monolaurin, a coconut extract, which works as an anti-viral. The first day we started the Monolaurin back up was the first day that Sean pooped on the toilet for us. When we first started giving Sean this particular supplement, he did not potty train right away for us. But it was an important first step to get to that goal. Monolaurin really helps bind up Sean's bowels, sending a more obvious signal when he needs to go! When we took him off of it, we didn't realize how sludgy Sean's poop had become again, so this is something we're going to stick with. Treatments for autism are very complicated, and sometimes you don't realize how something is affecting your kid unless you're very organized and document everything, or until you begin removing things and adding other things, which can help you to figure it all out. Once Sean is consistently using the toilet again, we'll see about adding cookies back in, one brand at a time.

I am so happy that we seem to have found the problem, or we're at least looking in the right places. If the Monolaurin continues to bring us success with Sean, we're going to look into starting Valtrex, which is a prescription medication for the herpes virus, which seems to be a successful mode of treatment for some kids on the spectrum. Apparently, some of our kids are suffering from an underlying virus, which is screwing up the body's ability to detox and function normally. Is it the vaccines that weaken the immune system and allow the viruses to take over? Who knows for sure right now. But I believe we'll find out eventually. And that's when our kids will stop getting autism.

And in other news, Sean is doing great with his speech. We are actually starting to understand what he's saying to us. How cool is that? And he's beginning to use his speech more and more for things that he wants and needs. He has also begun interacting very nicely with Annie. Yesterday, even though I had to ask him to do it, he tickled her. That was the first time he's ever done that. So we've got a lot going on. We're still chelating and doing iv glutathione pushes once per week, speech twice a week, and school the rest of the time.

Recovering your kid is really hard work. People that don't have autistic kids couldn't understand how much goes into this kind of a life. But it is so worth it! Sean is doing things that he wouldn't be doing yet, if ever, without this type of intervention. I love working with him and seeing him answer questions for me that I didn't know he could answer yet. That's when you say to yourself, "it's working!". He absorbs more at school because he feels better and can relate to everyone and everything better. That's all the proof I need that biomedical is the way to go!

Some Thoughts on the Election


Mike sent me a great article today about Sarah Palin and her attacks on Barack Obama regarding his abortion record. Everyone who knows me knows I am passionately pro-life, in every case. Good can never come out of a situation in which we kill an unborn child. I cannot even believe our great country offers abortion as a legal alternative to motherhood. Anyway, I am totally justified in saying this, as I was faced with an unplanned pregnancy, and an ex-boyfriend, at 20 years old. I chose life, not because it was easy, or the right time, but because it was the right thing to do. There simply was no other option. For me, there is only black and white on this issue.

Since it's looking more and more like Obama is going to win the White House on November 4th, I'm wondering where the hell the special needs community is? Sarah Palin is living what we live every day. She had the guts to do the right thing by her child Trig, and gave him life. She would be an incredible advocate for us in Washington! What is wrong with this country? We are putting our pocket books ahead of our morals in this election! Barack Obama doesn't give a damn about our special needs kids, for God's sake. If he's okay with NOT INTERVENING after a baby survives a botched abortion, then what makes you think he's going to do a thing to help our community? If we can legally kill our unwanted babies at all stages of gestation, up to and including the due date, then how long will it be until we can start terminating our special needs children when they become too much of a burden on us as parents? Does that sound crazy to you? It shouldn't. It's coming down the pike.

McCain and Palin have met with special needs families after rallies. I haven't heard about Obama and Biden doing anything like that. I just cannot believe people don't educate themselves on all the issues. They'll vote for Obama because he seems "nice", and he's young, and black, and his family is so cute. If that's what you base your vote on, then please, stay home. You are obliged, as an American citizen, to be educated and informed before stepping in that voting booth.

I'm just amazed at how many parents that blame the government in the first place, for letting big pharma get away with poisoning our kids with polluted vaccinations, will turn around and vote for this guy. Just ask the parents living over in Jersey how happy they are with the revised mandated vaccine schedule for their kids. They are ramming shots down those poor kids throats. Parents have less and less of a say. Jersey makes it very difficult to opt out. Very scary. But yes, let's elect Barack Obama, Corzine's fellow Democrat. They seem to be so friendly to the autism community!! Here's the link. You can read all about it.

http://politics.healthdiaries.com/new-jersey-makes-flu-shots-mandatory-for-preschoolers.html

At the end of the day, I guess our special needs community feels more strongly about paying less at the pump, and shitty government health care for all because you know, the government is so good at everything it takes control of, right? We'll see how this all turns out soon enough. Unfortunately, I believe we're about to make a huge mistake by electing the wrong guy for President to represent our kids. And our kids are going to continue paying the price for government's mistakes. They are the ones who will end up being the biggest losers in this election.

Wednesday, October 8, 2008

The Poop Update & the IEP

Well, I was hoping for a better update than what I have to offer right now - we've still got deliberate pooping in the pants going on - with occasional successes in the toilet. I picked up a bottle of "Tri Salts" on the advice of nurse Kim Hamada from Dr. Freedenfeld's office. They are supposed to help rid the body of any lingering gluten. I'm not sure if it will work or not, because I've been forgetting to add it to his juice. When I added it to his juice last week, he refused to drink it. Maybe it was too much in one cup, I don't know. I'll have to add it in smaller amounts and see what happens. So that's that...

Mike and I went to Sean's IEP last week and it went as expected. I want them to pay for private speech, and they don't want to put out an extra nickel unless forced to do so. What a crappy organization the Bucks County Intermediate Unit is! I'm not talking about the teachers and the therapists, but the organization itself. Their only objective is to give your child the basics, and nothing more! How do we get these kids functioning at a higher level with this kind of mediocre system in place? I know they are swamped with all the kids flooding into the system, but that's still not a good enough excuse for screwing all our kids. For instance, Sean has been receiving "small group" speech therapy for 2 going on 3 years now. Guess how much progress he's made in that kind of a setting? That's right - none. Since treating Sean with iv glutathione and chelation, he has finally begun making more sounds and has shown the ability to begin linking these sounds together in order to make words, thanks to Jennifer over at Yarley Speech & Language. I'm talking simple words like, "bat", and "daddy", and nice approximations for things like "my turn", "turtle", "that one", colors, numbers, and can even carry a tune, though you can't understand what the heck he's singing. I need Jennifer to see Sean for a few more weeks so she can write a really in depth, meaningful report about him so that I can call another IEP meeting and present to them her findings and diagnosis. Hopefully it will be enough, but I don't know. Families like ours are stressed out enough and then we have to deal with this kind of bullshit on top of it. Kinda makes you wonder if anybody BUT you really cares about your kid. Information about meaningful services is never freely given, but always a struggle to obtain.

Tomorrow we have our weekly chelation appointment. I always look forward to seeing all the great people that work in that office and treat Sean. It's a good thing to know that you're helping to remove filth from your child's body. I hope that in time, we will really start to see some promising results. It seems like we're always waiting on things - test results, changes in behaviors, meetings, dr. appts., etc.
I prayed for the virtue of patience and God gave me Sean - go figure. But for the record, I'm still working on it. I'm a LONG way from having "mastered" that skill!

Friday, October 3, 2008

Finding the Pieces of the Puzzle

Okay, so we were having smooth sailing (as smooth as it can be on the Sea of Autism) for about a month - we were having success with chelation, Sean was making strides - such as becoming fully potty trained. For parents with an autistic child, we all know what a HUMONGOUS deal this is! It's a huge milestone. I almost threw out the leftover Pull Ups, but decided not to just yet. Well, thank God for intuition because little did I know that just a few short weeks later, Sean would be back in them. Sigh...
I guess the most distressing part about it is that we don't know WHY Sean has reverted back to crapping in his pants. But I'm finding it very hard to deal with. It's a big loss, but hopefully one that can be overcome. We added casein back into his diet about the same time this toilet regression hit. Unfortunately, I also inadvertantly had added gluten back into Sean's diet as well. I saw "Wheat Free" on a package, and for some reason, for a couple of weeks, that translated in my brain as being "Gluten Free". I know, I know, there are other sources of gluten besides wheat. I've been doing this damn diet for a year now and should have been able to easily avoid such a stupid and careless mistake. So is the gluten infraction what caused the pooping in the pants? Or the casein? Hmmm....
Can't answer that yet since Sean hasn't pooped for 2 days. Stay tuned for an update.

Saturday, September 27, 2008

He's Immune!!

I've been having a fair amount of anxiety regarding taking Sean to his 5 year check up at the pediatrician's office. They want to shoot him up with his boosters, despite the fact that he has ASD. Thankfully, I had his titers tested over at Dr. Freedenfeld's office and he's immune to measles, mumps, rubella, polio & varicella. So they can kiss my ass when they try to inject my boy with more shots that he doesn't need!
I am so happy that I can go into that appointment with the proof in my hands that we are over-vaccinating our children. Why can't we check all our children's titers before administering booster shots? It just doesn't make any sense the way we're immunizing in this country!

Tuesday, September 23, 2008

"Your Son Is Capable of Having Functional Speech"

That is exactly what Sean's new speech therapist told me at his evaluation last Monday. She comes highly recommended. Nobody has ever offered our family that kind of hope before. She works with a family member of mine, and with another little boy on the spectrum who lives on our street.We're just getting started down this road (speech therapy), but I'm hoping we have a smooth ride with only a few bumps. But like my grandmother would say, "Don't expect anything and you won't be disappointed". Not that I'm expecting nothing, that wouldn't be true, but we are careful not to expect too much. Watching how hard Sean was working during those sessions to make certain sounds, and to say what he was being asked to say - remember now that he's basically non-verbal - made me very emotional. I had to blink back some tears! My boy is so determined! I love his spirit. He's an amazing child. And as his parents, Mike and I can only return that determination in helping him recover - to the best of his ability. Kids recover from autism every day. Maybe someday that will be our boy too. But if not, we still love him the same as we always have, knowing that we really did try to the best of our ability to give him as many skills as possible for a more normal life.

"When is Sean Gonna Be Done with Autism?"

That's what my 6 year old daughter Emily asked me the other day. I think she is finally getting to the age where she's becoming frustrated with Sean's lack of communication & social skills and just wants to have her younger brother to play with. I was wishing I could answer her with a , "Next week honey, we'll get all the autism out and Sean will be healthy again." But instead I answered her with an "I don't know baby, I wish I had the answer to that, but I don't." Our children know that we are chelating Sean to remove lead and other neurotoxic metals from his brain, bones, organs and other soft tissues. They see the amount of supplements he has to drink in his juice and that he needs help with things that they can do with ease. We're very proud of Sean's accomplishments and how much he has overcome up to this point. The kids know their brother has a disability and they look out for him - even Annie, his 3 year old sister looks out for her big brother. If the front door has been mistakenly left unlocked and Sean goes out, Annie comes and gets me right away. We are so lucky our kids understand that we all have a role to play concerning Sean's safety and well-being.
For a couple of weeks there, Sean was completely potty trained and it was absolutely wonderful. Since last week, when we added casein and egg whites back into his diet, he has begun doing # 2's in his underwear. I just can't go back to that. It's too mentally draining. He's also been super spaced out since last week too. We'll give it to the end of this week, if he doesn't improve, then we'll remove the casein and egg white again. Keeping our fingers crossed that he can stay in underwear. Especially since I just bought him really cool, comfortable cotton boxers! I've never seen the impact of diet in our son this way. It's very interesting to see the differences (regression) in him.

Sunday, September 7, 2008

Some Background on Sean

Ok, so here's our journey so far in a nutshell for anyone who's reading this blog and obviously somewhat interested. Sean was born perfectly healthy, we had no problems until his 2nd HepB vax. Sean became chronically congested from that point on. At only 8 weeks of age he received his first full round of immunizations: Prevnar, Hib, DTaP, and IPV. Looking back, I believe this is when Sean began to sink into the pit that is autism.
So after 18 months of chronic ear infections, no eye contact, no receptive or expressive language, no development of any social skills whatsoever, except for the tv, Sean had a love affair with the tv, we began to come out of our fog of denial.
We were referred to a neurodevelopmental pediatrician who gave us a PDD-NOS diagnosis, but nothing else. No help or hope of any kind. We left feeling pretty defeated that day. I think we did what most parents do - we started researching autism therapies online and looked into biomedical kind of skeptically. I thought it sounded like a load of crap and really wasn't interested in it at the time. So after a year of home therapy and then a year of autistic support preschool, and hardly any progress, we were getting desperate. This was around the same time Jenny McCarthy's book came out and she appeared on Oprah to talk about the biomedical approach and how it helped rescue her son from autism. I watched the entire show and couldn't buy her book fast enough. I immediately searched for a DAN! doctor in my area and made an appt. pronto. He was a homeopath and should never have been listed on the DAN! list but whatever, live and learn, right? We only stayed with him 6 months. He got Sean going on supplements and got him off gluten, which he's allergic to. We saw some progress, but it got to the point where we were telling him what we needed to do next in terms of treatments.
We went to the DAN! Conference in Cherry Hill, NJ this past April and were referred to Dr.Stu Freedenfeld, who treats autistic children. Our chief complaint when we first met with Dr. Freedenfeld was that Sean couldn't wear underwear because his diarrhea was so bad it leaked out of his Pull Up and down his legs.
Within 2 weeks from that first appointment, Sean was pooping out solid bm's. We were so excited! After some expensive pee tests, we found out Sean has way too much lead in his system so to get it out, we began using glutathione iv pushes once a week. Once we worked our way up to the max dose, we started with CA-EDTA chelation. Sean potty trained within a few days after starting that. Coincidence? I think not!
Don't get me wrong, we have a long road to travel, but we're in the right hands. We have a doctor who knows what he's going and has a fabulous reputation in the autism community. I don't know if we'll ever get Sean back to where he would have been before the autism set in, but I do know that as his parents, we're obligated to try to get him as close as we can to his fullest potential.
There are so many idiotic parents out there who call autism a blessing. How stupid is that? I'm sure their kids would agree that it's a blessing not fitting in at school, it's a blessing having the shits or being constipated every day, it's a blessing being so frustrated over not being able to communicate that these kids often injure themselves, or others, in desperation. Autism is a thief that steals children away from their families. And we're trying to find our little guy...

Latest Doctor Appointment

Okay, so we had an appointment on Tuesday, Sept. 2nd with Kim and Dr. Freedenfeld (he's over in Stockton, NJ and I highly recommend him) and it went fine. We're back on some supplements we had previously stopped giving Sean for a while - he really starts to stink. All the garbage that's in him starts coming out of his pores and his breath. Kind of gross. We're going to continue with the CA-EDTA chelation. It's pulling the lead, and that's a good thing. While giving Sean and his 3 year old sister Annie a bath tonight, I noticed that for the first time, Sean is really annoyed at his sister having any tub toys. He kept taking them off her. And it wasn't that he even wanted to play with the stuff, he just didn't want her to have any fun! If that's not typical 4 year old behavior, then I don't know what is!

Saturday, August 30, 2008

Better Late Than Never!

Although we started down the biomed path 10 months ago, we are just now getting into the blogosphere, detailing all the hurdles Sean has overcome since being diagnosed with an ASD in December of 2005, almost 2 months after his 2nd birthday.

Like many other parents, we have tried things that haven't helped, and things that have. We want to share our experiences and what we have learned so far with other families.

Stay tuned...